Resources for Parents

Peggy Halliday, MEd, BCBA

The following websites include milestones’ checklists, booklets, and a wealth of other helpful information. The contributions have been offered by parent groups as well as professional, medical, scientific, and legal and/or advocacy organizations which are available to meet the needs of families.

American Academy of Pediatrics (AAP) The AAP is an organization of 64,000 pediatricians committed to the well-being of all infants, children, adolescents, and young adults. The AAP website contains recent information about autism prevalence, links to many external resources and training websites, information about pediatrician surveillance and screening, and early intervention. This site offers great tools and resources for both pediatricians and families. https://www.aap.org/en-us/about-the-aap/Committees-Councils-Sections/Council-on-Children-with-Disabilities/Pages/Autism.aspx

Association for Behavior Analysis International (ABAI) The ABAI is a nonprofit professional membership organization whose objective for education is to develop, improve, and disseminate best practices in the recruitment, training, and professional development of behavior analysts. ABAI offers membership to professionals and consumers, which entitles them to the newsletter and other benefits. www.abainternational.org

Association of Professional Behavior Analysts (APBA) The APBA is a nonprofit organization that is focused on serving professional practitioners of behavior analysis by promoting and advancing the science and practice of applied behavior analysis. The APBA is a nonprofit professional membership organization. Membership is open to professional behavior analysts and others who are interested in the practice of ABA, including professionals from various disciplines, consumers, and students. www.apbahome.net

Autism New Jersey (Autism NJ) Established in 1965, Autism NJ is now the largest statewide network of parents and professionals dedicated to improving the lives of individuals with autism and their families. Autism New Jersey is a nonprofit agency committed to ensuring safe and fulfilling lives for individuals with autism, their families and the professionals who support them through awareness, credible information grounded in science, education, and public policy initiatives. www.autismnj.org

The Autism Science Foundation (ASF) As well as supporting autism research, the ASF provides information about autism to the general public and serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism. www.autismsciencefoundation.org/

Autism Speaks Autism Speaks supports global research into the causes, prevention, treatments, and cure for autism and raises public awareness. The website contains information on resources by state, resources for families, advocacy news, and suggested apps for learners with autism. The Autism Speaks 100 Day Kit for Newly Diagnosed Families of Young Children was created specifically for families of children ages 4 and younger to make the best possible use of the 100 days following their child’s diagnosis of autism. http://www.autismspeaks.org

Behavior Analyst Certification Board (BACB) The BACB is a nonprofit corporation established as a result of credentialing needs identified by behavior analysts, state governments, and consumers of behavior analysis services. Their mission is to develop, promote and implement an international certification program for behavior analysis practitioners. The BACB website contains information for consumers (including a description of behavior analysis), conduct guidelines, requirements for becoming certified and maintaining certification, and a registry of certificants that can be searched by name or state. www.bacb.com

Cambridge Center for Behavioral Studies The Cambridge Center for Behavioral Studies website contains behavior analysis resources, a glossary of behavioral terms, online tutorials and suggestions for effective parenting. A continuing education course series is offered through collaboration with the University of West Florida and is designed to provide instruction in a variety of areas of behavior analysis. To utilize all of the features of the website, you must register. www.behavior.org

Centers for Disease Control and Prevention (CDC) The Act Early website from the CDC contains an interactive and easy-to-use milestones’ checklist you can use to track how your child plays, learns, speaks, acts, and moves ages 3 months through 5 years. There are tips on how to share your concerns with your child’s doctor and free materials that you can order, including fact sheets, resource kits, and growth charts. www.cdc.gov/ncbddd/actearly/index.html

Council of Parent Attorneys and Advocates , Inc. (COPAA) The Council of Parent Attorneys and Advocates is a national American advocacy association of parents of children with disabilities, their attorneys, advocates, and others who support the educational and civil rights of children with disabilities. The website provides important information about entitlements under federal law. www.copaa.org

Council for Exceptional Children (CEC) The CEC is an international professional organization dedicated to improving the educational outcomes and quality of life for individuals with exceptionalities. The focus is on helping educators obtain the resources necessary for effective professional practice. Autism is one of many disabilities discussed. www.cec.sped.org

Education Resources Information Center (ERIC) Sponsored by the Institute of Education Services (IES) of the U.S. Dept. of Education, ERIC provides ready access to education literature to support the use of educational research and information to improve practice in learning, teaching, educational decision-making, and research. http://eric.ed.gov/

First Signs The First Signs website contains a variety of helpful resources related to identifying and recognizing the first signs of autism spectrum disorder, and the screening and referral process. A video glossary is useful in demonstrating how you can spot the early red flags for autism by viewing side-by-side video clips of children with typical behaviors in comparison with children with autism. www.firstsigns.org

Individuals with Disabilities Act (IDEA) IDEA is a law that ensures services to children with disabilities throughout the nation. IDEA governs how states and public agencies provide early intervention, special education, and related services to more than 6.5 million eligible infants, toddlers, children, and youth with disabilities. The IDEA website contains information on early intervention services, local and state funding, and Individualized Educational Plan (IEP) issues including evaluation, reevaluation, and procedural safeguards. http://idea.ed.gov

National Autism Center (NAC) The NAC is a nonprofit organization dedicated to disseminating evidence-based information about the treatment of autism spectrum disorder and promoting best practices. Through the multi-year National Standards Project, the NAC established a set of standards for effective, research-validated educational and behavioral interventions. The resulting National Standards Report offers comprehensive and reliable resources for families and practitioners. www.nationalautismcenter.org

National Professional Development Center on Autism Spectrum Disorders (NPDC) In 2014 the NPDC, using rigorous criteria, classified 27 focused interventions as evidence based practices for teaching individuals with autism. This website allows you to access online modules for many of these practices as well as an overview and general description, step-by-step instructions, and an implementation checklist for each of the practices. http://autismpdc.fpg.unc.edu/evidence-basedpractices

NIH National Institutes of Health (NIH) The NIH, a part of the U.S. Department of Health and Human Services, is the primary federal agency for conducting and supporting medical research. Helping to lead the way toward important medical discoveries that improve people’s health and save lives, NIH scientists investigate ways to prevent disease as well as researching the causes, treatments, and even cures for common and rare diseases. www.nih.gov

Organization for Autism Research (OAR) OAR is a nonprofit organization dedicated to applying research to the daily challenges of those living with autism. OAR funds new research and disseminates evidence-based information in a form clearly understandable to the non-scientific consumer. The OAR website contains downloadable autism information for families and professionals, as well as information on studies, research and grants. OAR offers recommendations and worksheets for educators and service providers to assist in classroom planning, and a newsletter, “The OARacle.” www.researchautism.org

Parents of Autistic Children (POAC) POAC is a nonprofit organization that is an educational leader for the New Jersey autism community. The group provides more free training than any other organization. Additionally, POAC provides recreational and support services to children with autism and their families. www.poac.net

Rethink The mission of Rethink is to offer parents and professionals immediate access to effective and affordable applied behavior analysis-based treatment tools for the growing population affected by autism spectrum disorders. Their web-based platform includes a comprehensive curriculum, hundreds of dynamic instructional videos of teaching interactions, step-by-step training modules, and progress tracking features. www.rethinkfirst.com/Default.aspx

Virginia Commonwealth University Autism Center for Excellence VCU-ACE is a university-based technical assistance, professional development, and educational research center for autism spectrum disorder in the state of Virginia. VCU-ACE offers a wide variety of online training opportunities for professionals, families, individuals with ASD, and the community at large. The website contains many useful resources, including a series of short how- to videos demonstrating particular evidence-based strategies. www.vcuautismcenter.org/index.cfm

Wrights Law Wrights Law is an organization which provides helpful information about special education law, education law, and advocacy for children with disabilities in the USA. The Wrights Law website contains an advocacy and law library including articles, cases, FAQs and success stories, and information on IDEA. www.wrightslaw.com

Zero to Three: National Center for Infants, Toddlers, and Families This is a national, nonprofit organization which seeks to inform, educate, and support professionals who influence the lives of infants and toddlers. The mission of the organization is to support the healthy development and well-being of infants, toddlers, and their families. The website shares information about the Military Families Project, which supplies trainings, information, and resources for military families with young children. www.zerotothree.org

Please use the following format to cite this article:

Halliday, P. (2016). Consumer corner: Some resources for parents. Science in Autism Treatment, 13(2), 27-31.